Genezen and The Charlotte & Gwenyth Gray Foundation to Cure Batten Disease Announce Manufacturing Partnership for CLN6 Gene Therapy Clinical Trial

Genezen, a gene therapy contract development and manufacturing organization (CDMO), and The Charlotte & Gwenyth Gray ...
Yahoo

Charlotte Gray, Daughter Of Producer Gordon & Kristen Gray, Has Died From Batten Disease At 13

Add Yahoo as a preferred source to see more of our stories on Google. Sad news to share today. Charlotte Gray died last Friday at age 13 and one half. The daughter of producer Gordon Gray and Kristen ...
1011 Now

Despite a deadly diagnosis, one Nebraska family is embracing every moment together

LINCOLN, Neb. (KOLN) — This weekend, hundreds of people gathered in Lincoln for a conference dealing with Batten Disease. It’s rare, it’s always deadly — and there is still no cure — affecting only a ...

Jack Danskin’s battle with extremely rare juvenile Batten disease

Jack has been diagnosed with CLN3-Batten disease (aka juvenile Batten disease) — an extremely rare neurodegenerative disorder ...
The National Law Review

Helen’s Pink Sky Foundation Launches to Accelerate Research for Batten Disease and Provide Support to Affected Families

EDEN PRAIRIE, MN / ACCESS Newswire / April 9, 2025 / Today, the Born and Schneider family announced the launch of Helen's Pink Sky Foundation, a new nonprofit dedicated to accelerating research, ...
Business Wire

THX Pharma and Biocodex Announce a Strategic Licensing Agreement in Batten, Gaucher and Niemann-Pick Type C Diseases

GENTILLY, France--(BUSINESS WIRE)--THX Pharma (Theranexus) and Biocodex, an independent international pharmaceutical group, today announced the execution of a strategic licensing agreement to advance ...
Science Daily

Fatal neurodegenerative disease in kids also affects the bowel

Researchers have described the neurodegeneration that occurs in the nervous system of the bowel in Batten disease, a rare and fatal genetic condition. In their latest study, a team showed that gene ...